Special Family Network

Read about Daisy, a young girl with Gastroschisis, who, thanks to an organ donor, is leading a full, happy life. Organ donation can save a person’s life. Please take more time to learn about organ donation at www.organdonor.gov.

Also, take a moment to learn about becoming a part of the National Marrow Donor Program at www.marrow.org. Your blood and bone marrow could save the life of a child suffering from Leukemia or any number of bone marrow dysfunction syndromes.

I found this wonderful family’s blog on their struggles as their son battled Wiskott Aldrich Syndrome. It especially hit home for me because they thought that my own son had Wiskott Aldrich Syndrome when he was an infant, but it turned out to be Shwachman-Diamond Syndrome. Please take a moment to look at this blog and pray for all who are dealing with this disease.

This is a very good video that shows a family going through their son’s treatments for Wiskott Aldrich Syndrome. Thankfully, today PJ is a healthy, happy child. Please take a moment to view his story.

Six football teams in Illinois raised over $12,000 for the Fragile X Research Foundation in honor of one team’s coach who has a son with this syndrome. For more on this heartwarming story, please read the whole article.

A father who has a son with Autism discusses the possible link between Autism and Mercury Poisoning. It is very interesting and informative.

In this cute video, a young girl with Cri Du Chat enjoys a fun day at the pool.

A young New Zealand boy, who had battled cancer himself, will be shaving his head for other children suffering from the disease in a “funrazor” event. Read this article for more information on his remarkable story. To find out more about the Funrazor please visit their website at www.funrazor.org.nz .

Mike Bailey, a young man with Down Syndrome, has been inducted into the San Jose Sports Hall of Fame. He is an avid athlete competing in such sports as power lifting, basket ball, and six others. Please take a moment to read this article about this exceptional young man and understand why it is so important to support the Special Olympics.

Many retailers are more than willing to give a donation to your cause. You just need to know where to look. Websites like igive.com and goodsearch.com (which is powered by Yahoo) are free to sign up. From their website, you click on links for stores like Barnes & Noble, Ebay, Gap, Drugstore.com, Fandango.com (there are many more), then a percentage of your purchase price will go to the charity of your choice. Mine is Shwachman-Diamond America in honor of my son with Shwachman-Diamond Syndrome.

For more information on Goodsearch, please see this article.

A new report shows that swimming may actually cause Athletic-induced Asthma (An illness that yours truly suffers from) This article is a must read for all who have loved ones who swim on a regular basis. It tells the causes and what to look for if you suspect that you or someone you know suffers from this condition.