» Cri Du Chat

More Stress? Really?

Honey — Sat, 11 Jul 2009 19:57:18 +0000

I recently saw an article that said that Mothers of Children With Autism Have More Stress. To that I can only say “You think?!” It is no secret that raising a child with a child with special needs comes with added stress. I would be quick to point out that it is worth every once of it, but that does not make it any easier.

Parents of special needs children sometimes have to deal with therapists, extra doctor’s appointments, more meetings at schools, and, in some cases, stares of people who just don’t understand. I had a friend, who is the mother of a child with Cri Du Chat, tell me that she gets so frustrated at mothers who complain about their children having a low grade fever or on how long it takes them to get one typically developing child ready for the day. She has to tube feed her son, give him his medications, dress him, make sure that his special inserts for his shoes are put on properly and be out the door before 7 in the morning. She often laments that those parents don’t realize how easy they have it.

Reading this article and reflecting on some of my other friend’s experiences only reminds me on how important it is that we all take care of ourselves. If we are stressed out and on the edge of jumping into the loony bin, we need to take a step back and do a little something for ourselves for a change even if that little something is shutting yourself in a closet with your favorite snack or locking the bathroom door and taking a long, hot bath. One particularly stressful morning, I put my kids in our playroom and hid on our stairs with my cup of coffee for five minutes. It helped me to gather my sanity and be a better mom for the day. I encourage all of you to do the same.

Young Girl With Cri Du Chat Enjoys a Day at the Pool

Honey — Tue, 27 Nov 2007 17:24:35 +0000

In this cute video, a young girl with Cri Du Chat enjoys a fun day at the pool.

Click here to view the embedded video.

Inspiring Cri Du Chat Story

Honey — Tue, 04 Sep 2007 18:45:05 +0000

After hearing about a father/son team that competes in triathlons (the son has Cerebral Palsy) a father of a five year old with Cri Du Chat started competing with his own son. In this article he describes how he has been inspired by his son by watching how hard he works in his many different therapies.

Best Buddies

Honey — Fri, 25 May 2007 02:32:26 +0000

This is a wonderful article about a young man with Cri Du Chat and his family. They have been involved in a program known as Best Buddies. Best Buddies is a nonprofit organization founded by Anthony Kennedy Shriver,� that’s main goal is to enhance the lives of people with intellectual disabilities by providing friendships and employment. For more information on Best Buddies, please visit their website.

Cri Du Chat Information

Honey — Tue, 15 May 2007 04:27:10 +0000

Cri Du Chat

Cri Du Chat is a genetic syndrome that is caused by a deletion on the short arm of the 5th chromosome. Cri Du Chat literally means “cry of the cat” which is in reference to the cat-like cry of a baby with Cri Du Chat. Other symptoms include low set ears, a small head, epicanthic folds of the eyelids, widely spaced eyes, a small receding chin, and a flat appearing nasal bridge. Not all children with Cri Du Chat will have every feature. For more information on Cri Du Chat, please see the Cri Du Chat support group of Australia.

Articles� � � Please click on the link to read the full article.
Read about Julyen.

Learn about some of the common behavior problems in chidren with Cri Du Chat and how to deal with them.