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	<title> &#187; General</title>
	<atom:link href="http://www.specialfamily.net/category/general/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.specialfamily.net</link>
	<description>For those who love a special needs child</description>
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		<title>The most vulnerable: Special needs adoption</title>
		<link>http://www.specialfamily.net/2009/09/21/the-most-vulnerable-special-needs-adoption/</link>
		<comments>http://www.specialfamily.net/2009/09/21/the-most-vulnerable-special-needs-adoption/#comments</comments>
		<pubDate>Mon, 21 Sep 2009 16:11:33 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Down Syndrome]]></category>
		<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://www.specialfamily.net/?p=206</guid>
		<description><![CDATA[The previous video if from last year’s Christmas project for Reece’s Rainbow, a nonprofit organization that helps children with Down Syndrome find homes. There will be a new Christmas campaign this year. Keep checking back to see what you can do this year to help. Adoption is one of those truly beautiful things that a [...]]]></description>
			<content:encoded><![CDATA[<p><a href="http://www.specialfamily.net/2009/09/21/the-most-vulnerable-special-needs-adoption/"><em>Click here to view the embedded video.</em></a></p>
<p>The previous video if from last year’s Christmas project for <a href="http://www.reecesrainbow.org/" target="_blank">Reece’s Rainbow</a>, a nonprofit organization that helps children with Down Syndrome find homes. There will be a new Christmas campaign this year. Keep checking back to see what you can do this year to help.</p>
<p>Adoption is one of those truly beautiful things that a person can do for someone else. My father was adopted and several family friends have adopted children who otherwise would be going to bed every night without a hug, kiss, and an “I love you” if it were not for the love and willingness to adopt on the part of their parents.</p>
<p>While there area thousands of children across the world waiting for a forever family, one population is often ignored. Children who have special needs are living on borrowed time. These children have been abandoned because their parents could not afford to take care of them, or they could not handle the stigma of having a child with special needs. Eventually these children wind up in institutions and die within a few years due to neglect or lack of proper medical care.</p>
<p>Even if you do not feel personally called to adopt a child with special needs, you can help these children find loving homes in which they can thrive by spreading the word or donating time and/or money to help those who do want to adopt. Someone made the comment to me “Well, we can’t save everyone.” Which is true, but if we can make the difference in one child’s life, that is one child who will live knowing that they are loved and wanted. That comment made to me reminds me of the Starfish story where a man was walking on the beach after a storm and the shore was littered with hundreds of star fish that were washed up by the violent ocean. In the distance he saw a child picking up one starfish at a time and throwing them back into the ocean. The man approached the child and told him not to bother and that he could not save them all. It would make no difference. In response, the child picked up another starfish and threw it back into the waves as hard as he could. He turned to the man and told him that he made a difference to that one.</p>
<p>It does not matter what you do to help these children. The important thing is that you do something. If the whole world sits back and thinks that the task is too big. There is nothing that I can do. Then nothing will be done. It is our duty and human beings to help those less fortunate and to make the world a better place. Let’s face it. The world could use a little more love and concern for those most vulnerable to neglect and indifference.</p>
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		<title>How to Prepare for the Birth of a Special Needs Child.</title>
		<link>http://www.specialfamily.net/2009/02/23/how-to-prepare-for-the-birth-of-a-special-needs-child/</link>
		<comments>http://www.specialfamily.net/2009/02/23/how-to-prepare-for-the-birth-of-a-special-needs-child/#comments</comments>
		<pubDate>Mon, 23 Feb 2009 18:47:29 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Uncategorized]]></category>

		<guid isPermaLink="false">http://www.specialfamily.net/?p=186</guid>
		<description><![CDATA[When a woman becomes pregnant she usually fantasizes about her unborn child. Who will the baby look like? What will the baby do when he/she grows up? With the advancement of medical technology we can now learn a lot about the baby before he or she is born. We can also discover if the baby [...]]]></description>
			<content:encoded><![CDATA[<p>When a woman becomes pregnant she usually fantasizes about her unborn child. Who will the baby look like? What will the baby do when he/she grows up? With the advancement of medical technology we can now learn a lot about the baby before he or she is born. We can also discover if the baby is going to have special needs. Finding out that the baby is going to be a special needs child can be devastating to some couples. There are several things that you can do to prepare yourself for the birth of your special needs child.</p>
<p>For full article, <a href="http://www.ehow.com/how_4723934_prepare-birth-special-needs-child.html" target="_blank">click here.</a></p>
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		<title>99 Balloons: An Inspiring Letter from a Father to His Son</title>
		<link>http://www.specialfamily.net/2009/01/20/99-balloons-an-inspiring-letter-from-a-father-to-his-son/</link>
		<comments>http://www.specialfamily.net/2009/01/20/99-balloons-an-inspiring-letter-from-a-father-to-his-son/#comments</comments>
		<pubDate>Wed, 21 Jan 2009 04:27:48 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[NICU Conditions]]></category>
		<category><![CDATA[Other Syndromes and Disorders]]></category>
		<category><![CDATA[special needs]]></category>
		<category><![CDATA[Trisomy 18]]></category>

		<guid isPermaLink="false">http://www.specialfamily.net/?p=174</guid>
		<description><![CDATA[This is such an emotionally moving video done by a man to his son, Elliot, who was born with Trisomy 18. Eliot only lived 99 days, but his life touched so many. Most parents who find out that their child has Trisomy 18 before birth choose to abort their baby. I applaud Eliot&#8217;s parents for [...]]]></description>
			<content:encoded><![CDATA[<p>This is such an emotionally moving video done by a man to his son, Elliot, who was born with Trisomy 18. Eliot only lived 99 days, but his life touched so many.</p>
<p>Most parents who find out that their child has Trisomy 18 before birth choose to abort their baby. I applaud Eliot&#8217;s parents for choosing life.  Their choice allowed them the precious gift of their son. As his father says in the video:</p>
<p>&#8220;An underdeveloped lung,  a heart with hole in it and DNA that placed faulty information into each and every cell in your body could not stop God from revealing himself through a child who never uttered a word. Not a pulpit not a slick presentation not a best selling book, but a six pound boy with Trisomy 18. God found great pleasure to take a lowly thing in the eyes of the world and show truth.&#8221;</p>
<p>Please watch this tribute to their son.</p>
<p><a href="http://www.specialfamily.net/2009/01/20/99-balloons-an-inspiring-letter-from-a-father-to-his-son/"><em>Click here to view the embedded video.</em></a></p>
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		<title>Cord Blood Stem Cell Transpland Saves Young Boy</title>
		<link>http://www.specialfamily.net/2008/01/31/cord-blood-stem-cell-transpland-saves-young-boy/</link>
		<comments>http://www.specialfamily.net/2008/01/31/cord-blood-stem-cell-transpland-saves-young-boy/#comments</comments>
		<pubDate>Fri, 01 Feb 2008 03:56:58 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Cancer]]></category>
		<category><![CDATA[Education]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[Other Syndromes and Disorders]]></category>
		<category><![CDATA[Shwachman-Diamond Syndrome]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2008/01/31/cord-blood-stem-cell-transpland-saves-young-boy/</guid>
		<description><![CDATA[Please take a moment to watch this video about a young boy named Titus who has aplastic anemia. Titus was born with his condition and this cord blood stem cell transplant was his best hope. It is a very informative video that explains how the transplant works.]]></description>
			<content:encoded><![CDATA[<p>Please take a moment to watch this video about a young boy named Titus who has aplastic anemia. Titus was born with his condition and this cord blood stem cell transplant was his best hope. It is a very informative video that explains how the transplant works.</p>
<p><a href="http://www.specialfamily.net/2008/01/31/cord-blood-stem-cell-transpland-saves-young-boy/"><em>Click here to view the embedded video.</em></a></p>
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		<title>Not Alone</title>
		<link>http://www.specialfamily.net/2008/01/27/not-alone/</link>
		<comments>http://www.specialfamily.net/2008/01/27/not-alone/#comments</comments>
		<pubDate>Sun, 27 Jan 2008 21:03:31 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Down Syndrome]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[Other Syndromes and Disorders]]></category>
		<category><![CDATA[Shwachman-Diamond Syndrome]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2008/01/27/not-alone/</guid>
		<description><![CDATA[&#8220;And the two will be one. So they are no longer two but one.&#8221; Mark 10:8 It is every parent&#8217;s worst nightmare: Learning that there is something wrong with your child. I remember that feeling all to well when a doctor told me that my son Luke probably had Cystic Fibrosis. I felt as though [...]]]></description>
			<content:encoded><![CDATA[<p>&#8220;And the two will be one. So they are no longer two but one.&#8221;  Mark 10:8</p>
<p>It is every parent&#8217;s worst nightmare: Learning that there is something wrong with your child. I remember that feeling all to well when a doctor told me that my son Luke probably had Cystic Fibrosis. I felt as though the room was shrinking, my brain went numb, and all I wanted to do was hold my <span class="link">baby</span> and cry. It turns out that my son did not have Cystic Fibrosis, but a rare genetic syndrome called Shwachman-Diamond Syndrome. It was a very long and difficult road to diagnosis and there were many times that I almost forgot about the one person who understood how I felt the most. My husband.</p>
<p><a href="http://www.associatedcontent.com/article/532847/not_alone.html" target="_blank">Read More </a></p>
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		<title>Music and Special Needs</title>
		<link>http://www.specialfamily.net/2007/12/13/music-and-special-needs/</link>
		<comments>http://www.specialfamily.net/2007/12/13/music-and-special-needs/#comments</comments>
		<pubDate>Fri, 14 Dec 2007 02:13:30 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Autism and Asperger's Syndrome]]></category>
		<category><![CDATA[Education]]></category>
		<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/12/13/music-and-special-needs/</guid>
		<description><![CDATA[Please take a moment to read this very special article about a woman who teaches music to people with special needs. At what turned out to be Jessica&#8217;s last lesson, I asked her what rain sounded like. She actually gave this some thought before gently playing a tinkling sound on the higher notes that steadily [...]]]></description>
			<content:encoded><![CDATA[<p>Please take a moment to read this very special article about a woman who teaches music to people with special needs.</p>
<p>At what turned out to be Jessica&#8217;s last lesson, I asked her what rain sounded like. She actually gave this some thought before gently playing a tinkling sound on the higher notes that steadily became more insistent. I again harmonized with chords whenever I could on the electric keyboard. &#8220;How about the wind?&#8221; I asked. Jessica responded by playing a glissando up and down the keys with varying intensity. &#8220;Thunder?&#8221; That was easy. She immediately gave a few staccato bursts from the bass keys. &#8220;OK! Lets <span class="link">play</span> the <span class="link">music</span> for a short Spring thunder storm.&#8221; We dove in. It was wonderful. Not only was it totally free-form, it was VERY musical! All too soon, the lesson was over and Jessica&#8217;s father, who usually waited across the street at the local <span class="link">coffee</span> shop but today waited across the hall in our living room, popped his head into the studio and said that it was time to go. <a href="http://www.associatedcontent.com/article/291519/teaching_music_to_those_with_special.html?page=5" target="_blank">Read More</a></p>
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		<title>Special Needs Children and the Power of Play</title>
		<link>http://www.specialfamily.net/2007/12/10/special-needs-children-and-the-power-of-play/</link>
		<comments>http://www.specialfamily.net/2007/12/10/special-needs-children-and-the-power-of-play/#comments</comments>
		<pubDate>Tue, 11 Dec 2007 02:40:36 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Other Syndromes and Disorders]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/12/10/special-needs-children-and-the-power-of-play/</guid>
		<description><![CDATA[See how the power of play is helping special needs children like Owen reach new goals and become more interactive with his family.]]></description>
			<content:encoded><![CDATA[<p>See how the power of play is helping special needs children like Owen reach new goals and become more interactive with his family.</p>
<p><a href="http://www.specialfamily.net/2007/12/10/special-needs-children-and-the-power-of-play/"><em>Click here to view the embedded video.</em></a></p>
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		<title>Diamond Blackfan Anemia &#8211; From the Perspective of a Thirteen Year Old Girl</title>
		<link>http://www.specialfamily.net/2007/12/04/diamond-blackfan-anemia-from-the-perspective-of-a-thirteen-year-old-girl/</link>
		<comments>http://www.specialfamily.net/2007/12/04/diamond-blackfan-anemia-from-the-perspective-of-a-thirteen-year-old-girl/#comments</comments>
		<pubDate>Wed, 05 Dec 2007 03:56:25 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Other Syndromes and Disorders]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/12/04/diamond-blackfan-anemia-from-the-perspective-of-a-thirteen-year-old-girl/</guid>
		<description><![CDATA[This is a letter written by a thirteen year old girl with Diamond Blackfan Anemia that shares her struggles, hopes, and dreams. Matter of fact, she believes that the biggest thing that she and others in her situation needs are blood donors. Please read her letter and think about giving the gift of life to [...]]]></description>
			<content:encoded><![CDATA[<p>This is a <a href="http://www.checkbiotech.org/orphan_News_people.aspx?infoId=1845" target="_blank">letter</a> written by a thirteen year old girl with Diamond Blackfan Anemia that shares her struggles, hopes, and dreams. Matter of fact, she believes that the biggest thing that she and others in her situation needs are blood donors. Please read her <a href="http://www.checkbiotech.org/orphan_News_people.aspx?infoId=1845" target="_blank">letter</a> and think about giving the gift of life to someone in need this Christmas season.</p>
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		<title>A Wiskott Aldrich Syndrome Blog</title>
		<link>http://www.specialfamily.net/2007/11/29/a-wiskott-aldrich-syndrome-blog/</link>
		<comments>http://www.specialfamily.net/2007/11/29/a-wiskott-aldrich-syndrome-blog/#comments</comments>
		<pubDate>Thu, 29 Nov 2007 15:10:57 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Other Syndromes and Disorders]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/11/29/a-wiskott-aldrich-syndrome-blog/</guid>
		<description><![CDATA[I found this wonderful family&#8217;s blog on their struggles as their son battled Wiskott Aldrich Syndrome. It especially hit home for me because they thought that my own son had Wiskott Aldrich Syndrome when he was an infant, but it turned out to be Shwachman-Diamond Syndrome. Please take a moment to look at this blog [...]]]></description>
			<content:encoded><![CDATA[<p>I found this wonderful family&#8217;s <a href="http://www.bigheartstudio.com/heartlinks/baden_klein.htm" target="_blank">blog </a>on their struggles as their son battled Wiskott Aldrich Syndrome. It especially hit home for me because they thought that my own son had Wiskott Aldrich Syndrome when he was an infant, but it turned out to be Shwachman-Diamond Syndrome. Please take a moment to look at this <a href="http://www.bigheartstudio.com/heartlinks/baden_klein.htm" target="_blank">blog</a> and pray for all who are dealing with this disease.</p>
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		<title>Shop for Your Cause</title>
		<link>http://www.specialfamily.net/2007/11/24/shop-for-your-cause/</link>
		<comments>http://www.specialfamily.net/2007/11/24/shop-for-your-cause/#comments</comments>
		<pubDate>Sat, 24 Nov 2007 17:17:56 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[General]]></category>
		<category><![CDATA[Non-Proffits]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/11/24/shop-for-your-cause/</guid>
		<description><![CDATA[Many retailers are more than willing to give a donation to your cause. You just need to know where to look. Websites like igive.com and goodsearch.com (which is powered by Yahoo) are free to sign up. From their website, you click on links for stores like Barnes &#38; Noble, Ebay, Gap, Drugstore.com, Fandango.com (there are [...]]]></description>
			<content:encoded><![CDATA[<p>Many retailers are more than willing to give a donation to your cause. You just need to know where to look. Websites like<a href="http://www.igive.com/" target="_blank"> igive.com </a>and<a href="http://www.goodsearch.com/default.aspx" target="_blank"> goodsearch.com</a> (which is powered by Yahoo) are free to sign up. From their website, you click on links for stores like Barnes &amp; Noble, Ebay, Gap, Drugstore.com, Fandango.com (there are many more), then a  percentage of your purchase price will go to the charity of your choice. Mine is Shwachman-Diamond America in honor of my son with Shwachman-Diamond Syndrome.</p>
<p>For more information on Goodsearch, please see this <a href="http://www.goodsearch.com/Press.aspx" target="_blank">article</a>.</p>
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		<title>Apraxia</title>
		<link>http://www.specialfamily.net/2007/11/09/apraxia/</link>
		<comments>http://www.specialfamily.net/2007/11/09/apraxia/#comments</comments>
		<pubDate>Sat, 10 Nov 2007 04:08:40 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Education]]></category>
		<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/11/09/apraxia/</guid>
		<description><![CDATA[My older son has been in speech therapy for quite a while now. The word Apraxia has been mentioned as a possibility for his speech delay, and, of course, I had to get on the internet to research it. I found a few interesting articles that I thought might be beneficial to those going down [...]]]></description>
			<content:encoded><![CDATA[<p>My older son has been in speech therapy for quite a while now. The word Apraxia has been mentioned as a possibility for his speech delay, and, of course, I had to get on the internet to research it. I found a few interesting articles that I thought might be beneficial to those going down the same road or for those looking for answers.</p>
<p><a href="http://www.sciencedaily.com/releases/2007/10/071029133114.htm" target="_blank">Cases of Apraxia of Speech are on the rise.</a></p>
<p><a href="http://www.medicalnewstoday.com/articles/87265.php" target="_blank">Baby Babble or a Sign of Speech Problems. </a></p>
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		<title>David MacDonald speaks out for the unborn</title>
		<link>http://www.specialfamily.net/2007/10/29/david-macdonald-speaks-out-for-the-unborn/</link>
		<comments>http://www.specialfamily.net/2007/10/29/david-macdonald-speaks-out-for-the-unborn/#comments</comments>
		<pubDate>Mon, 29 Oct 2007 19:52:41 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Education]]></category>
		<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/10/29/david-macdonald-speaks-out-for-the-unborn/</guid>
		<description><![CDATA[It is unfortunate and sad that so many women choose to abort a child because that child has a disability that he or she had no control over. Every human life is sacred. David MacDonald has been speaking out on behalf of the disabled unborn.]]></description>
			<content:encoded><![CDATA[<p>It is unfortunate and sad that so many women choose to abort a child because that child has a disability that he or she had no control over. Every human life is sacred. David MacDonald has been speaking out on behalf of the disabled unborn.</p>
<p><a href="http://www.specialfamily.net/2007/10/29/david-macdonald-speaks-out-for-the-unborn/"><em>Click here to view the embedded video.</em></a></p>
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		<title>How to Use an Epi-Pen</title>
		<link>http://www.specialfamily.net/2007/08/22/how-to-use-an-epi-pen/</link>
		<comments>http://www.specialfamily.net/2007/08/22/how-to-use-an-epi-pen/#comments</comments>
		<pubDate>Wed, 22 Aug 2007 18:18:09 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Education]]></category>
		<category><![CDATA[Food Allergies and other GI Disorders]]></category>
		<category><![CDATA[General]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/08/22/how-to-use-an-epi-pen/</guid>
		<description><![CDATA[This is a good vidoe on how to use an Epi-Pen. It is very important that everyone knows how to use this life saving device with the rise of allergies in this country.]]></description>
			<content:encoded><![CDATA[<p>This is a good vidoe on how to use an Epi-Pen. It is very important that everyone knows how to use this life saving device with the rise of allergies in this country.</p>
<p><a href="http://www.specialfamily.net/2007/08/22/how-to-use-an-epi-pen/"><em>Click here to view the embedded video.</em></a></p>
]]></content:encoded>
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		<slash:comments>0</slash:comments>
		</item>
		<item>
		<title>Kansas Senator supports parents of disabled children</title>
		<link>http://www.specialfamily.net/2007/07/15/kansas-senator-supports-parents-of-disabled-children/</link>
		<comments>http://www.specialfamily.net/2007/07/15/kansas-senator-supports-parents-of-disabled-children/#comments</comments>
		<pubDate>Mon, 16 Jul 2007 02:08:46 +0000</pubDate>
		<dc:creator>Honey</dc:creator>
				<category><![CDATA[Down Syndrome]]></category>
		<category><![CDATA[Education]]></category>
		<category><![CDATA[General]]></category>
		<category><![CDATA[Other Syndromes and Disorders]]></category>

		<guid isPermaLink="false">http://specialfamily.net/2007/07/15/kansas-senator-supports-parents-of-disabled-children/</guid>
		<description><![CDATA[A wonderful article on how Kansas Senator Sam Brownback says not to pressure parents who are going to have a special needs child to have an abortion.]]></description>
			<content:encoded><![CDATA[<p>A wonderful <a target="_blank" href="http://www.kansas.com/205/story/122372.html">article</a> on how Kansas Senator Sam Brownback says not to pressure parents who are going to have a special needs child to have an abortion.</p>
]]></content:encoded>
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		<slash:comments>0</slash:comments>
		</item>
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