Special Family Network

The hospital was our second home. It was another day, another long day of a visit to the emergency room for my younger brother’s treatment of Factor VIII, the clotting factor missing from his blood that disabled the bleeding from stopping. It was just another day. The sun was shining, his classmates were playing at recess when he got a nosebleed. All kids get nosebleeds, there’s no drama about it. But for him to get one, the playground got to take part in the most exciting event of the day; the ambulance, the paramedics working frantically to stop the blood, but with my brother, relaxed and enjoying his newfound popularity. Read More

As many of you probably know, dealing with health insurance companies is almost worse than dealing with your child’s condition. This is a video about a family who has a child with Hemophilia and all of the struggles that they are going through with insurance. For those of you fighting with evil insurance companies, know that you are not alone.

Here are some of the latests articles on Hemophilia.

Wyeth Pharmaceuticals Introduces The First Training Kit To Help People With Hemophilia Learn Self-Infusion Techniques.

The Story of Michael, an 11 year old with Hemophilia.