H. Denson
Not long ago, my son Luke started to complain about stomach pain. He would sometimes stop in the middle of play, look at us with his pitiful face and say “my tummy hurt.” We were really at a loss as to what we should do. I had told our GI who wanted to give [...]

Every year around New Year’s Eve, my husband and I try to take time out of the chaos that is our daily life and make goals for the coming year. We also like to reflect on the year that is passing and on life in general. I was thinking about this the other day when [...]

Please take a moment to watch this video about a young boy named Titus who has aplastic anemia. Titus was born with his condition and this cord blood stem cell transplant was his best hope. It is a very informative video that explains how the transplant works.

“And the two will be one. So they are no longer two but one.” Mark 10:8
It is every parent’s worst nightmare: Learning that there is something wrong with your child. I remember that feeling all to well when a doctor told me that my son Luke probably had Cystic Fibrosis. I felt as though [...]

Here are some interesting� videos on cord blood stem cell transplants. Cord blood stem cells have the potential to save thousands of lives. Encourage any expectant mother that you know to either save or donate her child’s cord blood.� It can save lives.

This is Luke. Luke is now 23 months old and he has Shwachman-Diamond Syndrome. It was a very long road to diagnosis for us. Everything seemed to be just fine when he came into the world on June 2, 2005 weighing in at 7 pounds even. Life was just perfect with this little [...]

Shwachman-Diamond Syndrome
Shwachman-Diamond Syndrome is a rare gentic sydnrome that affects the pancrease, bone marrow, and other organ systems in the body. Shwachman-Diamond is the second most common cause for pancreatic insufficency in children, with the most common being Cystic Fibrosis. Children with Shwachman-Diamond are frequently thought to have Cystic Fibrosis, thanks to the greasy stools [...]

Camp Sunshine is a free camp located in Maine for children who have life-threatening illnesses and their families. They run several different camps throughout the year which are designed around the child’s particular illness. This video happens to be from Shwachman-Diamond week 2006. For more information on Camp Sunshine visit their webstie at http://www.campsunshine.org.