99 Balloons: An Inspiring Letter from a Father to His Son
This is such an emotionally moving video done by a man to his son, Elliot, who was born with Trisomy 18. Eliot only lived 99 days, but his life touched so many. Most parents who find out that their child has Trisomy 18 before birth choose to abort their baby. I applaud Eliot’s parents for [...]
Cord Blood Stem Cell Transpland Saves Young Boy
Please take a moment to watch this video about a young boy named Titus who has aplastic anemia. Titus was born with his condition and this cord blood stem cell transplant was his best hope. It is a very informative video that explains how the transplant works.
Not Alone
“And the two will be one. So they are no longer two but one.” Mark 10:8 It is every parent’s worst nightmare: Learning that there is something wrong with your child. I remember that feeling all to well when a doctor told me that my son Luke probably had Cystic Fibrosis. I felt as though [...]
Special Needs Children and the Power of Play
- 12.10.07
- General, Other Syndromes and Disorders
- No Comments
See how the power of play is helping special needs children like Owen reach new goals and become more interactive with his family.
Diamond Blackfan Anemia – From the Perspective of a Thirteen Year Old Girl
- 12.04.07
- General, Other Syndromes and Disorders
- No Comments
This is a letter written by a thirteen year old girl with Diamond Blackfan Anemia that shares her struggles, hopes, and dreams. Matter of fact, she believes that the biggest thing that she and others in her situation needs are blood donors. Please read her letter and think about giving the gift of life to [...]
Organ Donation Saves a Girl With Gastroschisis
Read about Daisy, a young girl with Gastroschisis, who, thanks to an organ donor, is leading a full, happy life. Organ donation can save a person’s life. Please take more time to learn about organ donation at www.organdonor.gov. Also, take a moment to learn about becoming a part of the National Marrow Donor Program at [...]
A Wiskott Aldrich Syndrome Blog
- 11.29.07
- General, Other Syndromes and Disorders
- No Comments
I found this wonderful family’s blog on their struggles as their son battled Wiskott Aldrich Syndrome. It especially hit home for me because they thought that my own son had Wiskott Aldrich Syndrome when he was an infant, but it turned out to be Shwachman-Diamond Syndrome. Please take a moment to look at this blog [...]
A Wiskott Aldrich Syndrome Story
- 11.28.07
- Other Syndromes and Disorders
- No Comments
This is a very good video that shows a family going through their son’s treatments for Wiskott Aldrich Syndrome. Thankfully, today PJ is a healthy, happy child. Please take a moment to view his story.
Kansas Senator supports parents of disabled children
A wonderful article on how Kansas Senator Sam Brownback says not to pressure parents who are going to have a special needs child to have an abortion.
Cord Blood Stem Cell Transplants
Here are some interesting videos on cord blood stem cell transplants. Cord blood stem cells have the potential to save thousands of lives. Encourage any expectant mother that you know to either save or donate her child’s cord blood. It can save lives.