The hospital was our second home. It was another day, another long day of a visit to the emergency room for my younger brother’s treatment of Factor VIII, the clotting factor missing from his blood that disabled the bleeding from stopping. It was just another day. The sun was shining, his classmates were playing at recess when he got a nosebleed. All kids get nosebleeds, there’s no drama about it. But for him to get one, the playground got to take part in the most exciting event of the day; the ambulance, the paramedics working frantically to stop the blood, but with my brother, relaxed and enjoying his newfound popularity. Read More

John Mellencamp, who has Spina Bifida, has become the new spokesman for the Spina Bifida and Hydrocephalus Association of Canada. Read the entire article to find out how Spina Bifida has affected his life and what he is doing to help those who have the same condition.

The study of flawed stem cells may hold answers to a potential treatment for Fragile X. Read more about it in this interesting and informative article.

This is a letter written by a thirteen year old girl with Diamond Blackfan Anemia that shares her struggles, hopes, and dreams. Matter of fact, she believes that the biggest thing that she and others in her situation needs are blood donors. Please read her letter and think about giving the gift of life to someone in need this Christmas season.

This is a really good video that shows the faces of children suffering from Acute Lymphoblast Leukemia. It also reminds us that cancer cannot take away the important things in life such as love and faith.

This is a pretty informative video on Asthma by Dr. Michael Marcus. It is worth watching if you suspect that your child is suffering from Asthma.

This interesting article discusses how meditation helps children with ADHD. This Australian study took several children with ADHD and taught them Sahaja yoga meditation. The children who used this form of meditation showed improvement in anxiety and self esteem. For more info, please read the entire article.

Read about Daisy, a young girl with Gastroschisis, who, thanks to an organ donor, is leading a full, happy life. Organ donation can save a person’s life. Please take more time to learn about organ donation at www.organdonor.gov.

Also, take a moment to learn about becoming a part of the National Marrow Donor Program at www.marrow.org. Your blood and bone marrow could save the life of a child suffering from Leukemia or any number of bone marrow dysfunction syndromes.

I found this wonderful family’s blog on their struggles as their son battled Wiskott Aldrich Syndrome. It especially hit home for me because they thought that my own son had Wiskott Aldrich Syndrome when he was an infant, but it turned out to be Shwachman-Diamond Syndrome. Please take a moment to look at this blog and pray for all who are dealing with this disease.

This is a very good video that shows a family going through their son’s treatments for Wiskott Aldrich Syndrome. Thankfully, today PJ is a healthy, happy child. Please take a moment to view his story.